Intervjuer till "Living with Paediatric Acute-onset Neuropsychiatric Syndrome (PANS) – a Qualitative Study of Children’s Experiences in Sweden" Interviews for "Living with Paediatric Acute-onset Neuropsychiatric Syndrome (PANS) – a Qualitative Study of Children’s Experiences in Sweden" 2023-197-1 https://doi.org/10.58141/xbec-wq09 Swedish National Data Service Svensk nationell datatjänst Landing page Intervjuer till "Living with Paediatric Acute-onset Neuropsychiatric Syndrome (PANS) – a Qualitative Study of Children’s Experiences in Sweden" Interviews for "Living with Paediatric Acute-onset Neuropsychiatric Syndrome (PANS) – a Qualitative Study of Children’s Experiences in Sweden" 2023-197-1 https://doi.org/10.58141/xbec-wq09 urn:nbn:se:su:diva-221772 10.1080/23311908.2023.2259745 Ringer, Noam Ringer, Noam Swedish National Data Service Svensk nationell datatjänst Landing page Obsessive-Compulsive Disorder Tvångssyndrom Quality of Life Livskvalitet Child Behavior Disorders Beteendestörningar hos barn Autoimmune Diseases of the Nervous System Autoimmuna nervsjukdomar Neuroinflammatory Diseases Neuroinflammatoriska sjukdomar Transcriptions of interviews (in Swedish) where all personal information that could potentially enable identification of individuals has been removed. Seven textfiles numbered from 1-7 containing manual transcripts from interviews with children and adolescents in Sweden. Files are named Intervju1.txt, Intervju2.txt, etc. but file numbers are arbitrarily assigned and have no identifying function. Transkribering av intervjuer på svenska där all personlig information som kan leda till identifiering har tagits bort. Sju textfiler numrerade från 1-7 med manuella transkriberingar av intervjuer med barn och ungdomar. Filerna är benämnda Intervju1.txt, Intervju2.txt etc., men numreringen är godtycklig och har ingen identifierande funktion. Sweden Sverige FamilyFamily FamiljFamilj Children with PANS Barn och ungdomar med PANS Text Cross-sectionCross-section TvärsnittTvärsnitt The recruitment of children and adolescents diagnosed with PANS was done via advertisement on the websites of patient organizations, and in waiting rooms at child and youth medical clinics. Inclusion criteria for participation were children and youth aged 10 to 18 years, with a formal diagnosis of PANS. Participants varied in terms of the child’s age at the time of the interview as well as at the time of diagnosis, the course of the symptoms (i.e. episodic or chronic-static), the illness severity, treatment experiences, and sociocultural background. Participants also varied in what region of Sweden they lived in, as well as if they lived in rural villages or midsize or large cities. The variation in the regions of residence is relevant in the Swedish context, as every region has its own healthcare system.The recruitment of children and adolescents diagnosed with PANS was done via advertisement on the websites of patient organizations, and in waiting rooms at child and youth medical clinics. Inclusion criteria for participation were children and youth aged 10 to 18 years, with a formal diagnosis of PANS. Participants varied in terms of the child’s age at the time of the interview as well as at the time of diagnosis, the course of the symptoms (i.e. episodic or chronic-static), the illness severity, treatment experiences, and sociocultural background. Participants also varied in what region of Sweden they lived in, as well as if they lived in rural villages or midsize or large cities. The variation in the regions of residence is relevant in the Swedish context, as every region has its own healthcare system. Rekryteringen av barn och ungdomar med diagnosen PANS skedde via annonsering på patientorganisationernas hemsidor och i väntrum på barn- och ungdomsmedicinska mottagningar. Inklusionskriterier för deltagande var barn och ungdomar i åldrarna 10 till 18 år, med en formell diagnos av PANS. Deltagarna varierade i termer av barnets ålder vid tidpunkten för intervjun samt vid tidpunkten för diagnosen, symtomförloppet (dvs episodiskt eller kroniskt-statiskt), sjukdomens svårighetsgrad, behandlingsupplevelser och sociokulturell bakgrund. Deltagarna varierade också i vilken region av Sverige de bodde i, samt om de bodde på landsbygden eller i medelstora eller stora städer. Variationen i bostadsregionerna är relevant i det svenska sammanhanget, eftersom varje region har sin egen sjukvård.Rekryteringen av barn och ungdomar med diagnosen PANS skedde via annonsering på patientorganisationernas hemsidor och i väntrum på barn- och ungdomsmedicinska mottagningar. Inklusionskriterier för deltagande var barn och ungdomar i åldrarna 10 till 18 år, med en formell diagnos av PANS. Deltagarna varierade i termer av barnets ålder vid tidpunkten för intervjun samt vid tidpunkten för diagnosen, symtomförloppet (dvs episodiskt eller kroniskt-statiskt), sjukdomens svårighetsgrad, behandlingsupplevelser och sociokulturell bakgrund. Deltagarna varierade också i vilken region av Sverige de bodde i, samt om de bodde på landsbygden eller i medelstora eller stora städer. Variationen i bostadsregionerna är relevant i det svenska sammanhanget, eftersom varje region har sin egen sjukvård. Non-probabilityNon-probability Icke-sannolikhetsurvalIcke-sannolikhetsurval InterviewInterview IntervjuIntervju Access to data through SND. Access to data is restricted. Åtkomst till data via SND. Tillgång till data är begränsad. restrictedAccess Noam Ringer, Carin Benjaminson & Hampus Bejnö (2023) Living with Paediatric acute-onset neuropsychiatric syndrome (PANS) – a qualitative study of Children’s experiences in Sweden, Cogent Psychology, 10:1, DOI: 10.1080/23311908.2023.2259745 Noam Ringer, Carin Benjaminson & Hampus Bejnö (2023) Living with Paediatric acute-onset neuropsychiatric syndrome (PANS) – a qualitative study of Children’s experiences in Sweden, Cogent Psychology, 10:1, DOI: 10.1080/23311908.2023.2259745 urn:nbn:se:su:diva-221772 10.1080/23311908.2023.2259745 2023