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        <titl xml:lang="sv">YATSS - Tvillingstudie om hälsa och beteende hos unga vuxna</titl>
        <parTitl xml:lang="en">YATSS - Young Adult Twin Study in Sweden</parTitl>
        <IDNo agency="SND">2024-470-1</IDNo>
        <IDNo agency="ki.se">FOR 4-304/2013</IDNo>
      </titlStmt>
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        <producer xml:lang="en" abbr="SND">Swedish National Data Service</producer>
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      <titlStmt>
        <titl xml:lang="sv">YATSS - Tvillingstudie om hälsa och beteende hos unga vuxna</titl>
        <parTitl xml:lang="en">YATSS - Young Adult Twin Study in Sweden</parTitl>
        <IDNo agency="SND">2024-470-1</IDNo>
        <IDNo agency="ki.se">FOR 4-304/2013</IDNo>
        <IDNo agency="SwePub">oai:gup.ub.gu.se/255524</IDNo>
        <IDNo agency="DOI">10.1371/journal.pone.0179541</IDNo>
      </titlStmt>
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        <AuthEnty xml:lang="en" affiliation="Department of Medical Epidemiology and Biostatistics, Karolinska Institutet">Lichtenstein, Paul</AuthEnty>
        <AuthEnty xml:lang="sv" affiliation="Institutionen för Medicinsk epidemiologi och biostatistik, Karolinska Institutet">Lichtenstein, Paul</AuthEnty>
      </rspStmt>
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        <distrbtr xml:lang="en" abbr="SND" URI="https://snd.se">Swedish National Data Service</distrbtr>
        <distrbtr xml:lang="sv" abbr="SND" URI="https://snd.se">Svensk nationell datatjänst</distrbtr>
        <distDate xml:lang="en" date="2024-11-21" />
      </distStmt>
      <serStmt>
        <serName xml:lang="en" abbr="str">The Swedish Twin Registry</serName>
        <serInfo xml:lang="en">The Swedish Twin Registry collects, holds and distributes data about twins, for research projects with ethical permission.</serInfo>
        <serInfo xml:lang="sv">Svenska tvillingregistret samlar, håller och delar data om tvillingar till etikprövade forskningsprojekt</serInfo>
      </serStmt>
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        <version elementVersion="1" elementVersionDate="2024-11-21" />
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        <keyword xml:lang="en" vocab="ELSST" vocabURI="https://elsst.cessda.eu/id/6/91c1b36f-85ff-4345-9678-86a4950fe57a">HEALTH</keyword>
        <keyword xml:lang="sv" vocab="ELSST" vocabURI="https://elsst.cessda.eu/id/6/91c1b36f-85ff-4345-9678-86a4950fe57a">HÄLSA</keyword>
        <keyword xml:lang="en" vocab="ELSST" vocabURI="https://elsst.cessda.eu/id/6/df2c54c4-4f48-4da5-a0bf-e39cd8efa45d">GENETICS</keyword>
        <keyword xml:lang="sv" vocab="ELSST" vocabURI="https://elsst.cessda.eu/id/6/df2c54c4-4f48-4da5-a0bf-e39cd8efa45d">GENETIK</keyword>
        <keyword xml:lang="en" vocab="MeSH" vocabURI="http://id.nlm.nih.gov/mesh/D014427">Twins</keyword>
        <keyword xml:lang="sv" vocab="MeSH" vocabURI="http://id.nlm.nih.gov/mesh/D014427">Tvillingar</keyword>
        <topcClas xml:lang="en" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?code=Health.ReproductiveHealth">Reproductive health</topcClas>
        <topcClas xml:lang="sv" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?code=Health.ReproductiveHealth">Fortplantningshälsa</topcClas>
        <topcClas xml:lang="en" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?code=Health.GeneralHealthAndWellbeing">General health and well-being</topcClas>
        <topcClas xml:lang="sv" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?code=Health.GeneralHealthAndWellbeing">Allmän hälsa och välbefinnande</topcClas>
        <topcClas xml:lang="en" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?code=Psychology">PSYCHOLOGY</topcClas>
        <topcClas xml:lang="sv" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?code=Psychology">PSYKOLOGI</topcClas>
        <topcClas xml:lang="en" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?code=Health.DietAndNutrition">Diet and nutrition</topcClas>
        <topcClas xml:lang="sv" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?code=Health.DietAndNutrition">Kost och näring</topcClas>
        <topcClas xml:lang="en" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?code=Health.DrugAbuseAlcoholAndSmoking">Drug abuse, alcohol and smoking</topcClas>
        <topcClas xml:lang="sv" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?code=Health.DrugAbuseAlcoholAndSmoking">Drogmissbruk, alkohol och rökning</topcClas>
        <topcClas xml:lang="en" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?code=Health.PhysicalFitnessAndExercise">Physical fitness and exercise</topcClas>
        <topcClas xml:lang="sv" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?code=Health.PhysicalFitnessAndExercise">Fysisk form och träning</topcClas>
      </subject>
      <abstract xml:lang="en" contentType="abstract">A twin study on health and behavior in young adult twins born between 1985 and 1992 was conducted. The aim of the study was to examine how genetic and environmental factors influences diseases. The study included questions about gastrointestinal disorders, pulmonary disease, asthma/allergy, arthritis, affective disorders and symptoms, eating disorders , fibromyalgia, chronic fatigue syndrome and women's health. The sample consisted of both identical (monozygotic) and fraternal (dizygotic) twins, including same-sex and opposite-sex pairs. Conducted in 2013, the study had a total of 6,870 participants out of 16,244 invited.

Participants were also asked to provide DNA samples via saliva for zygosity determination and genotyping. A total of 4,000 twins who participated in the YATSS survey were genotyped.

The YATSS study includes the following question areas:
ADHD
Alcohol
Allergy
Autism
Burnout
CES-D - Center for Epidemiologic Studies Depression Scale -11 items, Iowa Form
Chronic fatigue syndrome
DCQ - Dysmorphic Concerns Questionnaire (BDD) - 7 items, swedish version
Demography
MDD - Major Depressive Disorder - 31 items
Eatingdisorders
Education and occupation
Epilepsy
EPQ - Eysenck Personality Questionnaire - 9 items
Fibromyalgia
GAD - Generalised Anxiety Disorder - 19 items
Headache
Hoarding - HRS-I (Hoarding Rating Scale-Interview) - 4 out of 5 items
IBS - Irritable Bowel Syndrome
Illicit drugs
Medical history
Menstruation och reproductive history
OA &amp; RA - Osteoarthritis and Rheumatoid arthritis
OCD - Obsessive Cumpulsive Disorder - 12 items
Physical activity
Performance
Psychosis
Reflux
Sexual risk behavior
SIL - sick leave
Sleep
Smoking and snuff use
Trauma
Urinary tract infection
Socio-economic index - classifation mainly based on information about individuals profession</abstract>
      <abstract xml:lang="sv" contentType="abstract">En tvillingstudie om hälsa och beteende hos unga vuxna tvillingar födda mellan 1985 och 1992. Syftet med studien är att visa hur arv och miljö påverkar sjukdomar. Studien innehåller frågor om mag- och tarmsjukdomar, lungsjukdomar, astma/allergi, artrit, affektiva sjukdomar och symtom, ätstörningar, fibromyalgi, kronisk trötthetssyndrom och kvinnors hälsa. Urvalet bestod av enäggstvillingar samt tvåäggstvillingar av samma eller olika kön inom tvillingparet. Studien genomfördes 2013 och det totala antalet deltagare är 6870 av 16244 inbjudna. 

I samband med YATSS-enkäten fick tvillingarna även en förfrågan om att lämna DNA via salivprov. DNA används för zygositetsbestämning och genotypning. Antalet genotypade tvillingar som deltagit i YATSS är 4000. 

Följande frågeområden ingår i YATSS-studien:
ADHD
Alkohol
Allergi
Autism
Utbrändhet
CES-D - Center for Epidemiologic Studies Depression Scale -11 frågor, Iowa Form
Kroniskt trötthetssyndrom
DCQ - Dysmorphic Concerns Questionnaire (BDD) - 7 frågor, svensk version
Demografi
MDD - Major Depressive Disorder - 31 frågor
Ätstörningar
Utbildning och arbete
Epilepsi
EPQ - Eysenck Personality Questionnaire - 9 frågor
Fibromyalgi
GAD - Generalised Anxiety Disorder - 19 frågor
Huvudvärk
Hoarding - samlarsyndrom - HRS-I (Hoarding Rating Scale-Interview)- 4 frågor av 5
IBS - Irritable Bowel Syndrome
Droger
Medicinsk historik
Menstruation och reproduktionshistorik
OA &amp; RA - Artros och Reumatoid artrit
OCD - Obsessive Cumpulsive Disorder - 12 frågor
Fysisk aktivitet
Prestation
Psykos
Reflux
Sexuellt riskbeteende
SIL - sjukskrivning
Sömn
Rökning och snusning
Trauma
Urinvägsinfektion
Socioekonomiskt index - klassifikation främst baserat på uppgifter om individers yrken</abstract>
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        <collDate xml:lang="en" date="2013-03" event="start">2013-03</collDate>
        <collDate xml:lang="en" date="2014-01" event="end">2014-01</collDate>
        <nation xml:lang="en" abbr="SE">Sweden</nation>
        <nation xml:lang="sv" abbr="SE">Sverige</nation>
        <anlyUnit xml:lang="en" unit="Individual">Individual<concept vocab="DDI Analysis Unit" vocabURI="https://vocabularies.cessda.eu/v2/vocabularies/AnalysisUnit/2.1.3?languageVersion=en-2.1.3">Individual</concept></anlyUnit>
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        <universe xml:lang="en">Twins born in Sweden between 1985-05-01 and 1992-06-30</universe>
        <universe xml:lang="sv">Tvillingar födda i Sverige mellan 1985-05-01 och 1992-06-30</universe>
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        <timeMeth xml:lang="en">Cross-section<concept vocab="DDI Time Method" vocabURI="https://vocabularies.cessda.eu/v2/vocabularies/TimeMethod/1.2.3?languageVersion=en-1.2.3">Cross-section</concept></timeMeth>
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        <timeMeth xml:lang="en">Longitudinal: Cohort/Event-based<concept vocab="DDI Time Method" vocabURI="https://vocabularies.cessda.eu/v2/vocabularies/TimeMethod/1.2.3?languageVersion=en-1.2.3">Longitudinal: Cohort/Event-based</concept></timeMeth>
        <timeMeth xml:lang="sv">Longitudinell: Kohort/Händelsebaserad<concept vocab="DDI Time Method" vocabURI="https://vocabularies.cessda.eu/v2/vocabularies/TimeMethod/1.2.3?languageVersion=sv-1.2.3">Longitudinell: Kohort/Händelsebaserad</concept></timeMeth>
        <sampProc xml:lang="en">The sample was based on all twins born in Sweden between May 1985 and June 1992 according to the Medical Birth Registry (the National Board of Health and Welfare). Twins who had declined further participation in the twin registry, had protected identity, had emigrated, or had died were excluded. Both complete twin pairs and individual twins were invited to participate in the study.<concept vocab="DDI Sampling Procedure" vocabURI="https://vocabularies.cessda.eu/v2/vocabularies/SamplingProcedure/2.0.1?languageVersion=en-2.0.1">The sample was based on all twins born in Sweden between May 1985 and June 1992 according to the Medical Birth Registry (the National Board of Health and Welfare). Twins who had declined further participation in the twin registry, had protected identity, had emigrated, or had died were excluded. Both complete twin pairs and individual twins were invited to participate in the study.</concept></sampProc>
        <sampProc xml:lang="sv">Urvalet utgick från alla tvillingar som fötts i Sverige från och med maj 1985 till och med juni 1992 enligt Medicinska födelseregistret (Socialstyrelsen). Tvillingar som tackat nej till att kontaktas av eller delta i Tvillingregistret, hade skyddad identitet, utvandrat eller avlidit exkluderades. Hela tvillingpar och enstaka tvillingar tillfrågades om att delta.<concept vocab="DDI Sampling Procedure" vocabURI="https://vocabularies.cessda.eu/v2/vocabularies/SamplingProcedure/2.0.1?languageVersion=sv-2.0.1">Urvalet utgick från alla tvillingar som fötts i Sverige från och med maj 1985 till och med juni 1992 enligt Medicinska födelseregistret (Socialstyrelsen). Tvillingar som tackat nej till att kontaktas av eller delta i Tvillingregistret, hade skyddad identitet, utvandrat eller avlidit exkluderades. Hela tvillingpar och enstaka tvillingar tillfrågades om att delta.</concept></sampProc>
        <collMode xml:lang="en">Paper or web questionnaire<concept vocab="DDI Mode of Collection" vocabURI="https://vocabularies.cessda.eu/v2/vocabularies/ModeOfCollection/5.0.0?languageVersion=en-5.0.0">Paper or web questionnaire</concept></collMode>
        <collMode xml:lang="sv">Frågeforumlär via webb eller papper<concept vocab="DDI Mode of Collection" vocabURI="https://vocabularies.cessda.eu/v2/vocabularies/ModeOfCollection/5.0.0?languageVersion=sv-5.0.0">Frågeforumlär via webb eller papper</concept></collMode>
        <collMode xml:lang="en">Self-administered questionnaire<concept vocab="DDI Mode of Collection" vocabURI="https://vocabularies.cessda.eu/v2/vocabularies/ModeOfCollection/5.0.0?languageVersion=en-5.0.0">Self-administered questionnaire</concept></collMode>
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    <dataAccs>
      <useStmt>
        <restrctn xml:lang="en">Access to data through an external actor. Access to data is restricted.</restrctn>
        <restrctn xml:lang="sv">Åtkomst till data via extern aktör. Tillgång till data är begränsad.</restrctn>
        <conditions elementVersion="info:eu-repo-Access-Terms vocabulary">restrictedAccess</conditions>
      </useStmt>
    </dataAccs>
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            <titl xml:lang="sv">Ivanov, V. Z., Nordsletten, A., Mataix-Cols, D., Serlachius, E., Lichtenstein, P., Lundström, S., Magnusson, P. K. E., Kuja-Halkola, R., &amp; Ruck, C. (n.d.). Heritability of hoarding symptoms across adolescence and young adulthood: A longitudinal twin study. In PLoS ONE (No. e0179541; Vol. 12, Issue 6). https://doi.org/10.1371/journal.pone.0179541</titl>
            <parTitl xml:lang="en">Ivanov, V. Z., Nordsletten, A., Mataix-Cols, D., Serlachius, E., Lichtenstein, P., Lundström, S., Magnusson, P. K. E., Kuja-Halkola, R., &amp; Ruck, C. (n.d.). Heritability of hoarding symptoms across adolescence and young adulthood: A longitudinal twin study. In PLoS ONE (No. e0179541; Vol. 12, Issue 6). https://doi.org/10.1371/journal.pone.0179541</parTitl>
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            <IDNo agency="SWEPUB">oai:gup.ub.gu.se/255524</IDNo>
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            <distDate date="2017">2017</distDate>
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