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        <titl xml:lang="sv">CATSS18 - The Child and Adolescent Twin Study in Sweden (18 år)</titl>
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        <IDNo agency="SND">2024-493-1</IDNo>
        <IDNo agency="DOI">10.1375/twin.14.6.495</IDNo>
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        <AuthEnty xml:lang="en" affiliation="Department of Medical Epidemiology and Biostatistics, Karolinska Institutet">Lichtenstein, Paul</AuthEnty>
        <AuthEnty xml:lang="sv" affiliation="Institutionen för medicinsk epidemiologi och biostatistik, Karolinska Institutet">Lichtenstein, Paul</AuthEnty>
        <AuthEnty xml:lang="en" affiliation="Department of Medical Epidemiology and Biostatistics, Karolinska Institutet">Magnusson, Patrik</AuthEnty>
        <AuthEnty xml:lang="sv" affiliation="Institutionen för medicinsk epidemiologi och biostatistik, Karolinska Institutet">Magnusson, Patrik</AuthEnty>
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        <grantNo xml:lang="en" agency="Swedish Research Council">2017-00641_VR, 2021-00180_VR</grantNo>
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        <distrbtr xml:lang="sv" abbr="SND" URI="https://snd.se">Svensk nationell datatjänst</distrbtr>
        <distDate xml:lang="en" date="2025-04-24" />
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        <serName xml:lang="en" abbr="str">The Swedish Twin Registry</serName>
        <serInfo xml:lang="en">The Swedish Twin Registry collects, holds and distributes data about twins, for research projects with ethical permission.</serInfo>
        <serInfo xml:lang="sv">Svenska tvillingregistret samlar, håller och delar data om tvillingar till etikprövade forskningsprojekt</serInfo>
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        <keyword xml:lang="sv" vocab="MeSH" vocabURI="http://id.nlm.nih.gov/mesh/D010641">Fenotyp</keyword>
        <keyword xml:lang="en" vocab="MeSH" vocabURI="http://id.nlm.nih.gov/mesh/D005823">Genetics</keyword>
        <keyword xml:lang="sv" vocab="MeSH" vocabURI="http://id.nlm.nih.gov/mesh/D005823">Genetik</keyword>
        <keyword xml:lang="en" vocab="MeSH" vocabURI="http://id.nlm.nih.gov/mesh/D005838">Genotype</keyword>
        <keyword xml:lang="sv" vocab="MeSH" vocabURI="http://id.nlm.nih.gov/mesh/D005838">Genotyp</keyword>
        <keyword xml:lang="en" vocab="MeSH" vocabURI="http://id.nlm.nih.gov/mesh/D006262">Health</keyword>
        <keyword xml:lang="sv" vocab="MeSH" vocabURI="http://id.nlm.nih.gov/mesh/D006262">Hälsa</keyword>
        <keyword xml:lang="en" vocab="MeSH" vocabURI="http://id.nlm.nih.gov/mesh/D014427">Twins</keyword>
        <keyword xml:lang="sv" vocab="MeSH" vocabURI="http://id.nlm.nih.gov/mesh/D014427">Tvillingar</keyword>
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        <keyword xml:lang="sv" vocab="MeSH" vocabURI="http://id.nlm.nih.gov/mesh/D059647">Gen-miljöinteraktion</keyword>
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        <topcClas xml:lang="en" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?code=Health.ReproductiveHealth">Reproductive health</topcClas>
        <topcClas xml:lang="sv" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?code=Health.ReproductiveHealth">Fortplantningshälsa</topcClas>
        <topcClas xml:lang="en" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?code=Health.SpecificDiseasesDisordersAndMedicalConditions">Specific diseases, disorders and medical conditions</topcClas>
        <topcClas xml:lang="sv" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?code=Health.SpecificDiseasesDisordersAndMedicalConditions">Specifika sjukdomar, störningar och medicinska tillstånd</topcClas>
        <topcClas xml:lang="en" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?code=Health.GeneralHealthAndWellbeing">General health and well-being</topcClas>
        <topcClas xml:lang="sv" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?code=Health.GeneralHealthAndWellbeing">Allmän hälsa och välbefinnande</topcClas>
        <topcClas xml:lang="en" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?code=SocialStratificationAndGroupings.Youth">Youth</topcClas>
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        <topcClas xml:lang="en" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?code=SocietyAndCulture.SocialBehaviourAndAttitudes">Social behaviour and attitudes</topcClas>
        <topcClas xml:lang="sv" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?code=SocietyAndCulture.SocialBehaviourAndAttitudes">Socialt beteende och attityder</topcClas>
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        <topcClas xml:lang="sv" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?code=Psychology">PSYKOLOGI</topcClas>
        <topcClas xml:lang="en" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?code=Health.DietAndNutrition">Diet and nutrition</topcClas>
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        <topcClas xml:lang="en" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?code=Other">OTHER</topcClas>
        <topcClas xml:lang="sv" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?code=Other">ÖVRIGT</topcClas>
        <topcClas xml:lang="en" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?code=Health.DrugAbuseAlcoholAndSmoking">Drug abuse, alcohol and smoking</topcClas>
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        <topcClas xml:lang="en" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?code=Health.PhysicalFitnessAndExercise">Physical fitness and exercise</topcClas>
        <topcClas xml:lang="sv" vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/vocabulary/TopicClassification?code=Health.PhysicalFitnessAndExercise">Fysisk form och träning</topcClas>
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      <abstract xml:lang="en" contentType="abstract">CATSS18 - The Child and Adolescent Twin Study in Sweden (18 years)

Overview CATSS

The Child and Adolescent Twin Study in Sweden (CATSS) is an ongoing longitudinal twin study that targets all twins born in Sweden since July 1, 1992. Since 2004, parents of twins have been interviewed about the children's somatic and mental health and social environment in connection with their 9th birthday (CATSS9). At ages 15 (CATSS15) and 18 (CATSS18), twins and parents complete a web questionnaire that, in addition to assessments of somatic and mental health, includes measures of personality development and psychosocial adaptation. At the age of 24 (CATSS24), only twins participate in a web survey that mainly focuses on mental health.

CATSS18:
CATSS18 started in 2011. The study includes all 18-year-old twins and their parents, regardless of their participation in CATSS9 or CATSS15. The response rate is 50% for the twin survey and 40% for the parent survey. The sample comprises both identical (monozygotic) and fraternal (dizygotic) twins, including same-sex and opposite-sex pairs. The total number of participating twins (through parent and/or twin participation) is currently 22,000 out of 38,400 invited twins (December 2025). The combined response rate is 57%. Participants who have not yet provided a DNA sample via saliva are requested to do so. The saliva sample is used for zygosity determination and genotyping. Currently, 13,700 twins have been genotyped in CATSS18 (December 2025).

The question areas in the CATSS18 surveys are listed below. For detailed information about variables, visit strdata.se.

Question areas in parent survey:

ABCL - Adult Behavior Checklist
A-TAC - Autism - Tics, ADHD and other Comorbidities inventory (only Autism-questions)
Demography
Asthma
Eating disorders
LEC - Life Events Checklist
LSC-R - Life Stressor Checklist
MDQ - Mood Disorder Questionnaire
PCR - Parent Child Relationship
PPCP - Parents' Perception of Child's Peers
PLE - Psychotic-like Experiences
Parents physical activity
Social Interventions
Spare Time Activities

Question areas in twin survey:

AUDIT - Alcohol Use Disorders Identification Test
A-TAC - Autism - Tics, ADHD and other Comorbidities inventory (only Autism-questions)
BOCS - Brief Obsessive Compulsive Scale
CES-D - Center for Epidemiologic Studies Depression Scale
CMRS- Child Mania Rating Scale
Demography
DAWBA - Development and Well-Being Assessment
DUDIT - Drug Use Disorders Identification Test
DSM-IV Criteria for Major Depressive Episode
DCQ - Dysmorphic Concerns Questionnaire
EDI-2 - Eating Disorder Inventory - 2
Friends' Behavior
HRS-I - Hoarding Rating Scale-Interview
LEC - Life Events Checklist 
LHA - Life History of Aggression
LSC-R - Life Stressor Checklist- Revised
Love Relationship 
MDQ - Mood Disorder Questionnaire
Nicotine Use
PCR - Parent Child Relationship
Phobias
Physical Activity
PLE - Psychotic-like Experiences
Premenstrual syndrome
Quality of Friendship
SCARED - Screen for Child Anxiety Related Emotional Disorders
SRD - Self-Reported Delinquency
Sexuality
Social Interventions
Spare Time Activities
Synesthesia
TCI - Temperament and Character Inventory
YPI - Youth Psychopathic Traits Inventory
Weight &amp; height</abstract>
      <abstract xml:lang="sv" contentType="abstract">CATSS18 - The Child and Adolescent Twin Study in Sweden (18 år)

Översikt CATSS

Tvillingstudien CATSS är en pågående longitudinell tvillingstudie som riktar sig till alla tvillingar födda i Sverige sedan 1 juli 1992. Sedan 2004 intervjuas tvillingföräldrar om barnens somatiska och psykiska hälsa och sociala miljö i samband med deras 9-årsdag (CATSS9). Vid 15 (CATSS15) och 18 (CATSS18) års ålder, fyller tvillingar och föräldrar i en webenkät som, förutom bedömningar av somatisk och mental hälsa, inkluderar mått på personlighetsutveckling och psykosocial anpassning. Vid 24 års ålder (CATSS24) fyller endast tvillingar i en webenkät som främst fokuserar på mental hälsa.

CATSS18:
CATSS18 startade 2011. Studien inkluderar alla 18-åriga tvillingar och deras föräldrar, oavsett om de tidigare deltagit i CATSS9 eller CATSS15. Svarsfrekvensen är 50% för tvillingarna och 40% för föräldrarna. Urvalet inkluderar enäggstvillingar samt tvåäggstvillingar av samma eller olika kön inom tvillingparet. Det totala antalet deltagande tvillingar (genom tvilling och/eller förälder) är för närvarande 22 000 av 38 400 inbjudna tvillingar (december 2025), vilket ger en kombinerad svarsfrekvens på 57%. De som inte tidigare lämnat DNA via salivprov erbjuds att göra det i samband med CATSS18. Salivprovet används för zygositetsbestämning och genotypning. Antalet genotypade tvillingar i CATSS18 är för närvarande 13 700 (december 2025).

De frågeområden som ingår i CATSS18 finns listade nedan. Detaljerad information om variabler finns på strdata.se. 

Frågeområden föräldrar:

ABCL - Adult Behavior Checklist
A-TAC - Autism - Tics, ADHD and other Comorbidities inventory (endast Autism-frågorna)
Demografi
Astma
Ätstörningar
LEC - Life Events Checklist
LSC-R - Life Stressor Checklist- Revised
MDQ - Mood Disorder Questionnaire
PCR - Parent Child Relationship
PPCP - Parents' Perception of Child's Peers
PLE - Psychotic-like Experiences
Fysisk aktivitet hos föräldrar
Sociala insatser
Fritidsaktiviteter

Frågeområden tvillingar:

AUDIT - Alcohol Use Disorders Identification Test 
A-TAC - Autism - Tics, ADHD and other Comorbidities inventory (endast Autism-frågor)
BOCS - Brief Obsessive Compulsive Scale
CES-D - Center for Epidemiologic Studies Depression Scale
CMRS - Child Mania Rating Scale
Demografi
DAWBA - Development and Well-Being Assessment
DUDIT - Drug Use Disorders Identification Test
DSM-IV Criteria for Major Depressive Episode
DCQ - Dysmorphic Concerns Questionnaire
EDI-2 - Eating Disorder Inventory - 2
Friends' Behavior
HRS-I - Hoarding Rating Scale-Interview
LEC - Life Events Checklist
LHA - Life History of Aggression
LSC-R - Life Stressor Checklist- Revised
Love Relationship
MDQ - Mood Disorder Questionnaire
Nikotinanvändning
PCR - Parent Child Relationship
Fobier
Premenstruellt syndrom
Fysisk aktivitet
PLE - Psychotic-like Experiences
Quality of Friendship
SCARED - Screen for Child Anxiety Related Emotional Disorders
SRD - Self-Reported Delinquency
Sexualitet
Sociala insatser
Synestesi
Fritidsaktiviteter
TCI - Temperament and Character Inventory
YPI - Youth Psychopathic Traits Inventory
Vikt och längd</abstract>
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            <titl xml:lang="sv">Anckarsäter H, Lundström S, Kollberg L, Kerekes N, Palm C, Carlström E, Långström N, Magnusson PK, Halldner L, Bölte S, Gillberg C, Gumpert C, Råstam M, Lichtenstein P. The Child and Adolescent Twin Study in Sweden (CATSS).
Twin Res Hum Genet. 2011 Dec;14(6):495-508.</titl>
            <parTitl xml:lang="en">Anckarsäter H, Lundström S, Kollberg L, Kerekes N, Palm C, Carlström E, Långström N, Magnusson PK, Halldner L, Bölte S, Gillberg C, Gumpert C, Råstam M, Lichtenstein P. The Child and Adolescent Twin Study in Sweden (CATSS).
Twin Res Hum Genet. 2011 Dec;14(6):495-508.</parTitl>
            <IDNo agency="DOI">10.1375/twin.14.6.495</IDNo>
          </titlStmt>
          <distStmt>
            <distDate date="2011">2011</distDate>
          </distStmt>
        </citation>
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