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            <r:String xml:lang="sv">Excessive premature mortality among children with cerebral palsy in rural Uganda: a longitudinal, population-based study</r:String>
            <r:String xml:lang="en">Excessive premature mortality among children with cerebral palsy in rural Uganda: a longitudinal, population-based study</r:String>
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            <r:String xml:lang="sv">Functional development in children and youth with cerebral palsy in Uganda</r:String>
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            <r:String xml:lang="sv">Delaktighet för barn och unga med cerebral pares i Uganda: aktivitetsnärvaro och medverkan jämfört med jämnåriga utan cerebral pares</r:String>
            <r:String xml:lang="en">Participation of children and youth with cerebral palsy in rural Uganda: Activity attendance and involvement compared with peers without cerebral palsy</r:String>
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            <a:FirstGiven>Hans</a:FirstGiven>
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              <r:String>Hans Forssberg</r:String>
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            <a:FirstGiven>Angelina</a:FirstGiven>
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        <r:String xml:lang="sv">Data för: Participating outcome of  Akwenda Intervention Program for children with cerebral palsy in Uganda</r:String>
        <r:String xml:lang="en">Data for: Participating outcome of Akwenda Intervention Program for children with cerebral palsy in Uganda</r:String>
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          <r:String xml:lang="sv">Karolinska Institutet</r:String>
          <r:String xml:lang="en">Karolinska Institutet</r:String>
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          <r:String xml:lang="sv">Karolinska Institutet</r:String>
          <r:String xml:lang="en">Karolinska Institutet</r:String>
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        <r:SimpleDate>2025-01-29</r:SimpleDate>
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      <r:Content xml:lang="sv">Detta var en kluster-randomiserad, kontrollerad, enkelblind studie på en kohort av barn och ungdomar med CP i Iganga-Mayuge Health and Demographic Surveillance Site. CP-kohorten var uppdelad i två armar: en som fick Akwenda-interventionsprogrammet och den andra fungerade som kontroll i väntan på att få interventionen följande år. Barn med epilepsi i båda grupperna fick anti-epileptiska läkemedel. Resultaten utvärderades före och efter interventionsperioden.

Data har samlats in innan interventionen startade (2021; baslinje) och efter att interventionen på 12 månader avslutades (2022).

Randomiserad, kontrollerad, interventionsstudie.

Basdata: Sociodemografisk information och kliniska data inklusive antropometri, nivåer för klassificeringssystem för grov motorik (GMFCS).

Primärt utfall: Picture My Participation (PMP); frekvens av närvaro och nivå av engagemang i 20 dagliga aktiviteter.

Datasetet består av följande filer:
- Data sharing PMP Akwenda.xlsx (48,7 kB)
- Documentation file data sharing PMP.docx
Mer information om variablerna i tabellerna finns i dokumentationsfilen.</r:Content>
      <r:Content xml:lang="en">This was a cluster-randomized, controlled, single-blinded study on a cohort of children and young people with CP in the Iganga-Mayuge Health and Demographic Surveillance Site. The CP cohort was divided in two arms: one receiving the Akwenda Intervention program, and the other serving as control waiting to receive the intervention the following year. Children with seizures in both groups were provided anti-seizure medications. Outcomes were assessed prior to and after the intervention period.

The Excel sheet includes the data collected before the intervention started (2021; baseline), and after the 11 months intervention ended (2022; follow-up).

Randomized, controlled, intervention trial.

Baseline data: Sociodemographic information and clinical data including anthropometry, Gross Motor Function Classification System (GMFCS) levels.

Primary outcome:  Picture My Participation (PMP); frequency of attendance and level of involvement in 20 activities of daily living.

The dataset contains of the following files:
- Data sharing PMP Akwenda.xlsx (48.7 kB)
- Documentation file data sharing PMP.docx
Details about the variables in the tables can be found in the documentation file.</r:Content>
    </r:Abstract>
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