The Swedish National study on Aging and Care in Kungsholmen (SNAC-K) - Befolkning: Ny grupp 81-åringar SNAC-K The Swedish National study on Aging and Care in Kungsholmen (SNAC-K) - Population: New cohort 81-year olds ext0125-5-1 Swedish National Data Service Svensk nationell datatjänst http://onlinelibrary.wiley.com/doi/10.1111/j.1369-7625.2006.00426.x/abstract http://swepub.kb.se/bib/swepub:oai:gup.ub.gu.se/81042 http://gup.ub.gu.se/publication/81042-the-demand-for-old-age-care http://onlinelibrary.wiley.com/doi/10.1111/j.1471-6712.2007.00549.x/full http://www.sciencedirect.com/science/article/pii/S0167494307001380# The Swedish National study on Aging and Care in Kungsholmen (SNAC-K) - Befolkning: Ny grupp 81-åringar SNAC-K The Swedish National study on Aging and Care in Kungsholmen (SNAC-K) - Population: New cohort 81-year olds ext0125-5-1 10.1111/j.1365-2524.2007.00706.x 978-91-7357-253-8 10.1080/13607860802154416 10.12968/ijpn.2006.12.6.21454 oai:DiVA.org:su-25073 urn:nbn:se:su:diva-25073 10.1080/13607860701797232 10.1186/1471-2458-6-171 10.1123/japa.15.1.41 10.1080/17453670610013204 10.1007/BF03324630. 10.1111/j.1369-7625.2006.00426.x 10.1111/j.1365-2524.2005.00570.x 10.1007/BF03324746 10.1016/j.archger.2006.03.004 10.1080/11038120510031743 10.1007/BF03324630 10.1007/BF03324447 10.1111/j.1471-6712.2007.00549.x oai:DiVA.org:hj-28848 10.1111/hsc.12237 urn:nbn:se:hj:diva-28848 10.1007/s00198-004-1796-x 10.1177/0969733007075887 10.1097/YCO.0b013e32816ebc7b 10.1007/BF03000189 10.1111/j.1365-2702.2005.01278.x 10.1037/a0014048 10.1007/BF03324851 10.1007/BF03324883 10.1080/13814780600881128 10.1007/s10433-006-0029-x 10.2337/db06-0879 10.1016/j.archger.2007.02.005 10.1111/j.1748-3743.2007.00097.x 10.1080/02813430500428919 10.1016/j.archger.2007.06.001 10.1080/02813130500475522 10.1007/BF03324695 10.1007/BF03324546 Fratiglioni, Laura Fratiglioni, Laura Meinow, Bettina Meinow, Bettina Swedish National Data Service Svensk nationell datatjänst NEAR - National E-Infrastructure for Aging Research in Sweden The global increase in life expectancy is one of the greatest achievements of the last half century. However, the demographic development towards an older population poses tremendous societal and medical challenges globally, especially in developed countries such as Sweden. Promoting healthy ageing is therefore one of the most important commitments of the 21st century and to succeed, scientifically based knowledge of older individuals’ health- and care requirements are needed. To better understand the individual and population aging process, the National E-infrastructure for Aging Research (NEAR) was founded in 2018 to build and run a national infrastructure by integrating existing databases from the major population-based longitudinal studies on aging and health in Sweden. NEAR comprises 15 databases located at 8 different universities, which allows comparison, integration, and pooling of data from a large Swedish sample of 180 000 older adults aged 50+ years. NEAR includes information on clinical, biological, social, and environmental data that are assessed at the individual level by physicians, nurses, and psychologists on several occasions during a follow-up period ranging between 12 and 52 years. The creation of a national infrastructures, such as NEAR, is needed to achieve broad, multidisciplinary research perspectives that cannot be achieved by individual databases. Moreover, to address the increased health demands of an older population and enhance new opportunities for aging research, a critical mass of data is needed to increase sample sizes, variations, representativeness, and generalizability. Ultimately, this can lead to the identification of sustainable intervention strategies for better health and care for older persons in Sweden during the coming decades. Den globalt ökade livslängden är en av de senaste halvseklets största landvinningar. Men den demografiska utvecklingen mot en äldre befolkning innebär även enorma samhälleliga och medicinska utmaningar globalt och särskilt i utvecklade länder som Sverige. Att främja ett hälsosamt åldrande är därför en av 2000-talets viktigaste åtaganden och för att lyckas behövs vetenskapligt baserad kunskap om äldres hälsa och vårdbehov. För att bättre förstå åldrandet utifrån ett individuellt samt grupperspektiv grundades den nationella e-infrastrukturen för äldreforskning (NEAR) år 2018. Denna nationella infrastruktur har byggts upp och drivs genom att integrera befintliga databaser från de största populationsbaserade longitudinella studierna om åldrande och hälsa i Sverige. NEAR består av 15 databaser från 8 olika universitet vilket möjliggör jämförelse, integrering och sammanslagning av data från ett stort urval av 180 000 individer som är 50 år och äldre. NEAR tillhandahåller kliniska, biologiska, sociala och miljömässiga data som samlats in på individnivå av läkare, sjuksköterskor och psykologer vid upprepade tillfällen över en uppföljningsperiod som varierar mellan 12 och 52 år. En nationell infrastruktur som NEAR behövs för att uppnå multidisciplinära forskningsperspektiv som inte kan åstadkommas genom användandet av enskilda databaser. För att ta itu med de ökade hälsoutmaningarna som kommer med en åldrande befolkning, samt förbättra nya möjligheter till äldreforskning behövs dessutom en kritisk massa av data för att öka urval, variation, representativitet och generaliserbarhet. I slutändan kan detta leda till utvecklandet av hållbara interventionsstrategier för bättre hälsa och omsorg av äldre i Sverige under de kommande decennierna. SNAC - Swedish National study on Aging and Care The Swedish National Study on Aging and Care (SNAC) includes four participating regions: SNAC-Blekinge, SNAC-Kungsholmen, SNAC-Nordanstig, and SNAC-Skåne (GÅS). Each of these four regions has a research center that conducts both a population study and a study of the care system. The fundamental idea behind the study is to collect area-based, individual-level data over an extended period of time, 30 years or more, in order to increase understanding of various aspects of aging, including health and the emergence of care and support needs, viewed from social, medical, and psychological perspectives. At the same time, information is recorded about the services each individual receives from municipal elder care and regional healthcare, as well as support provided by family members and voluntary organizations. All of this information is compiled into a longitudinal database, which makes it possible to follow both individuals and care interventions over time. This enables researchers, from a holistic perspective, to study how care and support needs change, how well they are met and effects of different interventions. Den nationella äldrestudien SNAC - The Swedish National Study on Aging and Care - innefattar fyra deltagande områden: SNAC-Blekinge, SNAC-Kungsholmen, SNAC-Nordanstig och SNAC-Skåne (GÅS). Vid samtliga fyra områden finns ett forskningscentrum som bedriver en befolkningsstudie och dels en vårdsystemstudie. Den grundläggande idén med studien är att under en längre tidsperiod, 30 år eller mer, samla in områdesvis individbaserad information för att öka förståelsen för åldrandets olika aspekter, inklusive hälsa och uppkomsten av behov av vård och omsorg, sett ur sociala, medicinska och psykologiska perspektiv. Samtidigt registreras vilka insatser den enskilde får från kommunal äldreomsorg och regionernas hälso- och sjukvård, samt uppgifter om stöd från anhöriga och frivilligorganisationer. All denna information samlas i en longitudinell databas, vilket gör det möjligt att följa både individer och vårdinsatser över tid. Genom detta kan man, ur ett helhetsperspektiv, studera hur vård- och omsorgsbehoven förändras, hur väl de tillgodoses samt effekterna av olika insatser. http://onlinelibrary.wiley.com/doi/10.1111/j.1369-7625.2006.00426.x/abstract http://swepub.kb.se/bib/swepub:oai:gup.ub.gu.se/81042 http://gup.ub.gu.se/publication/81042-the-demand-for-old-age-care http://onlinelibrary.wiley.com/doi/10.1111/j.1471-6712.2007.00549.x/full http://www.sciencedirect.com/science/article/pii/S0167494307001380# CARE OF THE ELDERLY ÄLDREOMSORG Aged Äldre AGEING ÅLDRANDE Housing for the Elderly Äldreboende PENSIONS PENSION LIVING CONDITIONS LEVNADSFÖRHÅLLANDEN MENTAL HEALTH PSYKISK HÄLSA Age Groups Åldersgrupper Health Services Hälso- och sjukvård Therapeutics Behandlingsmetoder Activities of Daily Living Aktiviteter i dagliga livet Physical Examination Hälsokontroll Blood Pressure Blodtryck Aged, 80 and over Äldre, 80 och över Blood Specimen Collection Blodprovstagning Epidemiologic Studies Epidemiologiska studier Cohort Studies Kohortstudier Dental Care for Aged Äldretandvård Data Collection Datainsamling Health Surveys Hälsoundersökningar Dementia Demens Population Characteristics Befolkningskarakteristika Frail Elderly Sköra äldre Hearing Hörsel Geriatric Psychiatry Äldrepsykiatri Life Style Livsstil Interview Intervjuer [Publikationstyp] Medicine Medicin Heart Function Tests Hjärtfunktionstester Electrocardiography Elektrokardiografi Follow-Up Studies Uppföljningsstudier Nursing Care Omvårdnad Geriatric Nursing Äldrevård Memory Minne Longitudinal Studies Longitudinella studier Prospective Studies Prospektiva studier Exercise Träning Population Surveillance Populationsövervakning Vision Tests Syntester Social Sciences Samhällsvetenskap Socioeconomic Factors Socioekonomiska faktorer Risk Factors Riskfaktorer Middle Aged Medelålders personer Mortality Dödlighet Marital Status Civilstånd Cause of Death Dödsorsaker Surveys and Questionnaires Kartläggning och enkäter Epidemiology Epidemiologi Public Health Folkhälsa Health Hälsa Health Services Research Hälso- och sjukvårdsforskning Economics, Medical Hälsoekonomi Health Status Hälsotillstånd Body Weight Kroppsvikt Culture Kultur Drug Utilization Läkemedelsförsörjning Retention, Psychology Minnesförmåga (Psykologi) Organizational Innovation Organisatorisk innovation Retirement Pensionering Interpersonal Relations Mellanmänskliga relationer Registries Register Disease Sjukdom Hospitalization Sjukhusvistelse Morbidity Sjuklighet Delivery of Health Care Leverans av hälso- och sjukvård Social Environment Social miljö Social Conditions Sociala villkor Social Problems Sociala problem Social Support Socialt stöd Vision, Ocular Syn Quality of Life Livskvalitet HOUSING CONDITIONS BOSTADSFÖRHÅLLANDE LEISURE TIME ACTIVITIES FRITIDSAKTIVITETER HEIGHT (PHYSIOLOGY) LÄNGD WEIGHT (PHYSIOLOGY) VIKT The national study SNAC - The Swedish National Study on Aging and Care, includes four participating areas: SNAC-Blekinge, SNAC Kungsholmen, SNAC Nordanstig and SNAC Skåne (GÅS). In all four areas, a research centre conducts a population study and a health care system study. (Metadata related to the main study SNAC and the other participating areas can be found under the Related studies tab). SNAC-K Kungsholmen SNAC-K is conducted by the Stockholm Gerontology Research Center in collaboration with Aging Research Center (ARC), Karolinska Institutet. SNAC-K population study: The population study consists of a clinical examination of persons over 60 years, who live in the area of Kungsholmen/Essingeöarna. The baseline data collection includes information on present status and past events. The information has been collected through interviews, clinical examinations, and testing. All staff (nurses, psychologists, and physicians) has been trained for data collection. Each subject has been examined for six hours on average; two hours for the social interview and the assessment of physical functioning (performed by a nurse); two hours for clinical examination, including geriatric, neurological and psychiatric assessment (performed by a physician); and two hours for cognitive assessment (performed by a psychologist). SNAC-K care system study: The care system data collection consists of continuous recording of the provision of public eldercare for persons over 65 years. For 2004-2020, data comprise all recipients of municipal eldercare in the district of Kungsholmen. Starting in 2015, data comprise all recipients of municipal eldercare in the whole municipality of Stockholm. Data are based on individual assessments made by the municipal need assessors for each decicison regarding the provision of eldercare services. Data include information about the type and amount of care and services granted, as well as information on need indicators (e.g., disability,physical function, cognitive impairment, mental health, living situation, housing). For specific research questions, data from the care system study can be complemented with register data on health care consumption provided by the Region of Stockholm (VAL-databas). The care system perspective and the population perspective are joined through those elderly persons who participate in both parts of the study. Purpose: Population study: The purpose is to study the transition from normal aging to morbidity and impaired functional ability by identify how social and biological factors, and the environment, affect older people's health, functional ability and life expectancy. The intention is to study the positive and negative events in life that may be relevant to aging. Care system study: The aim of SNAC-K care system study is to continuously monitor the allocation of public eldercare in relation to need indicators. Collected data can be used as a basis for planning, resource allocation and evaluation of the provision of eldercare services and health care among older adults. Available data can also be used in research and development around the issues of the provision of social and heath care. The connection to the SNAC-K population study gives a unique opportunity for comparisons between care recipients and non-recipients. A new population 81-year olds was examined in 2007-2009, when 194 individuals participated. The population was followed up in 2010-2012, when 148 individuals participated. Further follow-up is ongoing in 2013-2015. For more information please visit: https://www.snac-k.se/for-researchers/data-description/ https://www.snac-k.se/for-researchers/code-books/ Den nationella äldrestudien SNAC - The Swedish National Study on Aging and Care, innefattar fyra deltagande områden: SNAC-Blekinge, SNAC-Kungsholmen, SNAC-Nordanstig och SNAC-Skåne (GÅS). Vid samtliga fyra områden finns ett forskningscentrum som bedriver en befolkningsstudie och dels en vårdsystemstudie. Under 'Relaterade studier' finns beskrivning om huvudstudien SNAC, samt specifik studiebeskrivning för respektive delstudie inom SNAC. SNAC-K Kungsholmen I Stockholm svarar Äldrecentrum för studien SNAC-K. Den genomförs i Kungsholmens stadsdel som omfattar Kungsholmen och Essingeöarna. Arbetet bedrivs tillsammans med Aging Research Center (ARC). Befolkningsdel: Datainsamlingen i befolkningsdelen avser uppföljning av hälsa, sjukdom, funktionsförmåga, sociala förhållanden och vårdbehov genom upprepade undersökningar, intervjuer, enkäter etc. Denna information kompletteras med olika slag av register data. Datainsamlingen sker genom att deltagarna får träffa en sjuksköterska, en läkare och en psykolog. Vårdsystemdel: Datainsamlingen i vårdsystemdelen består av en fortlöpande kartläggning av biståndsbedömda behov och beviljade insatser från äldreomsorgen för personer över 65 år. För åren 2004-2020 omfattas samtliga omsorgstagare boende på Kungsholmen. Fr.o.m. 2015 omfattas samtliga omsorgstagare i hela Stockholms kommun. För specifika frågeställningar kompletteras data med uppgifter från Region Stockholms patientregister (VAL-databasen). Vårdsystemdelen och befolkningsdelen förenas genom de personer som deltar i båda delarna av SNAC-studien. Syfte: Inom ramen för SNAC har befolkningsdelen i delstudien SNAC-K speciellt inriktats på demens, multisjuklighet samt fysisk och mental funktionsförmåga. Syftet med studien är bland annat att studera övergången från normalt åldrande till sjuklighet och nedsatt funktionsförmåga genom att kartlägga hur sociala och biologiska faktorer, samt miljön, inverkar på de äldres hälsa och funktionsförmåga och förväntad livslängd. Avsikten är att studera negativa och positiva händelser under livet som kan ha betydelse för åldrandet. Syftet med SNAC-K vårdsystemdelen är att över tid studera olika perspektiv på jämlik och behovsstyrd äldreomsorg för personer 65 år och äldre. Detta sker geom att beskriva och analysera hur behov av bistånd bedöms och beviljas enligt Socialtjänstlagen (SoL) bland personer 65 år och äldre. Syftet innefattar även att analysera hur äldreomsorgens insatser samvarierar med konsumtion av hälso- och sjukvård och med stöd och hjälp från anhöriga (informell omsorg), och hur detta förändras över tid. Insam­lade data kan användas som underlag för planering, resursfördelning och utvärdering av vård­en och omsorgen av de äldre. Tillgängliga data kan också användas i forsknings- och utvecklings­arbete kring frågor om vård och omsorg. Genom att kombinera data från befolkningsdelen och vårdsystemdelen ges unika möjligheter att göra jämförelser mellan dem som har och dem som inte har insatser från kommunens äldreomsorg. En ny population med 81-åringar undersöktes mellan åren 2007-2009, då 194 individer deltog. Populationen har därefter följts upp mellan åren 2010-2012, då 148 individer deltog. Ytterligare uppföljning pågår 2013 - 2015. För mer information vänligen se: https://www.snac-k.se/for-researchers/data-description/ och https://www.snac-k.se/for-researchers/code-books/ Sweden Sverige IndividualIndividual IndividIndivid Individuals aged 60 or over, living in the district of Kungsholmen. Personer 60 år eller äldre, bosatta på Kungsholmen/Essingeöarna. Numeric The population study: The SNAC-K population consists of a random sample of individuals aged 60˗104 years living both at home and in institutions in Kungsholmen, Stockholm in the central part of Sweden. The random sample was stratified by age cohort and year of assessment and an oversampling of those aged 60 years respectively > 81 years of age was conducted for all the SNAC studies. In SNAC-K, eleven age cohorts were chosen (60, 66, 72, 78, 81, 84, 87, 90, 93, 96, and 99) with six year intervals for the younger cohorts and three years for the older cohorts (≥78 years). During the baseline examination in 2001-04, 3363 individuals were included (response rate 73.3%). Participants who are 78 years of age or older are followed up every three years, while for those aged 60 to 72 years, follow-up will take place every six years. Data have been collected at seven waves over a total of 20 years and is ongoing. The care system study: The care system study includes all eldercare recipients 65 years or older, for the years 2004-2020 in the district of Kungsholmen (annually ~1200-1800 individuals) and from 2015 and onwards in the whole municipality of Stockholm (annually ~21000 individuals).The population study: The SNAC-K population consists of a random sample of individuals aged 60˗104 years living both at home and in institutions in Kungsholmen, Stockholm in the central part of Sweden. The random sample was stratified by age cohort and year of assessment and an oversampling of those aged 60 years respectively > 81 years of age was conducted for all the SNAC studies. In SNAC-K, eleven age cohorts were chosen (60, 66, 72, 78, 81, 84, 87, 90, 93, 96, and 99) with six year intervals for the younger cohorts and three years for the older cohorts (≥78 years). During the baseline examination in 2001-04, 3363 individuals were included (response rate 73.3%). Participants who are 78 years of age or older are followed up every three years, while for those aged 60 to 72 years, follow-up will take place every six years. Data have been collected at seven waves over a total of 20 years and is ongoing. The care system study: The care system study includes all eldercare recipients 65 years or older, for the years 2004-2020 in the district of Kungsholmen (annually ~1200-1800 individuals) and from 2015 and onwards in the whole municipality of Stockholm (annually ~21000 individuals). Befolkningsdelen: Ett urval av 3500 personer som är folkbokförda på Kungsholmen kallas när de fyller 60, 66, 72, 78, 81, 84, 87, 90, 93 eller 96 år. Dessa personer följs regelbundet - de yngre vart sjätte år och de äldre vart tredje. Vart sjätte år läggs en ny grupp 60-åringar till studiepopulationen. En första undersökning (baseline) genomfördes mellan åren 2001-2004, då 3363 personer deltog. Vårdsystemdelen: Vårdsystemdelen omfattar samtliga personer 65 år och äldre som beviljats insatser från den kommunala äldreomsorgen. För åren 2004-2020 inkluderas personer bosatta i stadsdelen Kungsholmen (årligen ca. 1200-1800 personer), fr.o.m. 2015 samtliga i Stockholms kommun (årligen ca. 21000 personer).Befolkningsdelen: Ett urval av 3500 personer som är folkbokförda på Kungsholmen kallas när de fyller 60, 66, 72, 78, 81, 84, 87, 90, 93 eller 96 år. Dessa personer följs regelbundet - de yngre vart sjätte år och de äldre vart tredje. Vart sjätte år läggs en ny grupp 60-åringar till studiepopulationen. En första undersökning (baseline) genomfördes mellan åren 2001-2004, då 3363 personer deltog. Vårdsystemdelen: Vårdsystemdelen omfattar samtliga personer 65 år och äldre som beviljats insatser från den kommunala äldreomsorgen. För åren 2004-2020 inkluderas personer bosatta i stadsdelen Kungsholmen (årligen ca. 1200-1800 personer), fr.o.m. 2015 samtliga i Stockholms kommun (årligen ca. 21000 personer). Probability: StratifiedProbability: Stratified Sannolikhetsurval: stratifierat urvalSannolikhetsurval: stratifierat urval Total universe/Complete enumerationTotal universe/Complete enumeration Hela populationen/total räkningHela populationen/total räkning Access to data through an external actor. Access to data is restricted. Åtkomst till data via extern aktör. Tillgång till data är begränsad. restrictedAccess Kristensson J, Hallberg IR, Jakobsson U. 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