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Next of kin participation in the care of older people in nursing homes – a pre-post non-randomised educational evaluation, using within group and individual person-level comparisons

https://doi.org/10.5878/bknc-4277
An instrument, Next of Kin Participation in Care (NoK-PiC) with two subscales: Communication and Trust (CaT); and Collaboration in Care (CiC), are compared within groups (control and intervention groups) before and after an educational intervention. Comparisons can be done using raw scores as well as linearized scores. Individual person level significance is given. The project implemented an educational intervention across 30 nursing homes. The intervention consisted of five 2-hour seminars addressing the knowledge and skills considered necessary to provide evidence-based palliative care in nursing homes. The content was based on fundamental principles of palliative care. The topics covered by each seminar were: 1) the palliative approach and dignified care; 2) NoK; 3) existence and dying; 4) symptom relief and 5) collaborative care. SPSS data file with age, gender, control/intervention group, raw scores for the total scale (NoK-PiC) and for subscales (CaT and CiC) before and after an educational intervention. Linearized scores with standard errors, and individual person-level significance is also given. Empty cells means that the questions are not answered
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Data files

  • Analyses.pdf
    611.31 KiB
  • Next of Kin Participation in Care.sav
    42.46 KiB
  • Questionnaire Next of Kin Participation in Care.pdf
    435.47 KiB

Documentation files

  • Analyses.pdf
    611.31 KiB
  • Questionnaire Next of Kin Participation in Care.pdf
    435.47 KiB

Citation and access

Data access level:

Creator/​Principal investigator(s):

Research principal:

Data contains personal data:

No

Citation:

Language:

Method and outcome

Unit of analysis:

Population:

Next of kin of older people in nursing homes.

Study design:

  • Observational study

Description of study design:

A pre-post non-randomised control and intervention group evaluation

Sampling procedure:

Description of sampling:

Consecutive

Variables:

40

Number of individuals/​objects:

203

Data format/​data structure:

Data collection Self-administered questionnaire

Mode of collection:

Self-administered questionnaire

Source of the data:

  • Research data

Geographic coverage

Geographic location:

Administrative information

Responsible department/​unit:

Faculty of health sciences

Ethics Review:

Lund - 2015/69

Topic and keywords

Standard för svensk indelning av forskningsämnen 2025:

Keywords:

Relations

Related research data:

Publications

Citation:

Ahlstrom, G., Nilsen, P., Benzein, E., Behm, L., Wallerstedt, B., Persson, M., & Sandgren, A. (2018). Implementation of knowledge-based palliative care in nursing homes and pre-post post evaluation by cross-over design: a study protocol. BMC Palliative Care, 17, Article 52. https://doi.org/10.1186/s12904-018-0308-2Opens in a new tab

Citation:

Westergren, A., Behm, L., Lindhardt, T., Persson, M., & Ahlström, G. (2020). Measuring next of kin’s experience of participation in the care of older people in nursing homes. PLoS ONE, 15(1). https://doi.org/10.1371/journal.pone.0228379Opens in a new tab

Metadata

Version 1
doris
Kristianstad University
Published: