YATSS - Young Adult Twin Study in Sweden
Documentation files
Documentation files
Citation and access
Citation and access
Data access level:
Creator/Principal investigator(s):
Research principal:
Principal's reference number:
- FOR 4-304/2013
Data contains personal data:
Yes
Type of personal data:
Pseudonymised, health data, social security number, lifestyle, exposures, names, addresses, survey responses
Code key exists:
Yes
Sensitive personal data:
Yes
Citation:
Method and outcome
Method and outcome
Unit of analysis:
Population:
Twins born in Sweden between 1985-05-01 and 1992-06-30
Time method:
Study design:
- Cohort study
- Observational study
Description of study design:
Data collection was conducted via a web survey, but also via paper questionnaires if participants desired it. Participation in the study was based on informed consent.
Description of sampling:
The sample was based on all twins born in Sweden between May 1985 and June 1992 according to the Medical Birth Registry (the National Board of Health and Welfare). Twins who had declined further participation in the twin registry, had protected identity, had emigrated, or had died were excluded. Both complete twin pairs and individual twins were invited to participate in the study.
Variables:
1130
Number of individuals/objects:
6870
Response rate/participation rate:
42%
Description of the response rate/participation rate:
Out of 16,244 invited participants, 6,870 responded, resulting in a response rate of 42%.
Samples/material - Collected from scientific collection/biobank
Samples/material - Collected from scientific collection/biobank
Name:
Type(s) of sample:
Data collection - Self-administered questionnaire
Data collection - Self-administered questionnaire
Mode of collection:
Self-administered questionnaire
Description of the mode of collection:
Paper or web questionnaire
Time period(s) for data collection:
2013-03 - 2014-01
Data collector:
- Karolinska Institutet
Opens a new window at ror.org.
ROR
Source of the data:
- Registers/Records/Accounts: Medical/Clinical
- Registers/Records/Accounts
Instrument
Instrument
Name:
CES-D
Type:
Structured questionnaire
Description of the instrument:
The CES-D scale is used to rate how often over the past week respondents experienced symptoms associated with depression, such as restless sleep, poor appetite, and feeling lonely. DOI: 10.1177/089826439300500202 DOI: 10.1177/014662167700100306
Name:
DCQ
Type:
Structured questionnaire
Description of the instrument:
The DCQ is a self-report measure with seven items which ask about cognitive and behavioural aspects of dysmorphic concern. See document YATSS_Instrument_DCQ_svensk.pdf DOI: 10.3109/00048679809062719 DOI: 10.1046/j.1440-1614.2001.00860.x DOI: 10.3109/00048671003596055
Name:
OCD
Type:
Structured questionnaire
Description of the instrument:
A scale that measures symptoms of obsessive-compulsive disorder. DOI: 10.1037//1040-3590.14.4.485
Name:
HRS-I
Type:
Structured questionnaire
Description of the instrument:
A five-item semi-structured interview that assesses the features of compulsive hoarding (clutter, difficulty discarding, acquisition, distress and impairment). DOI: 10.1016/j.psychres.2009.05.001
Name:
MDD
Type:
Structured questionnaire
Description of the instrument:
Major Depressive Disorder Diagnostic and Statistical Manual of Mental Disorders, 4th Edition, Text Revision (DSM-IV-TR; APA, 2000).
Geographic coverage
Geographic coverage
Geographic location:
Geographic description:
Nationwide
Administrative information
Administrative information
Responsible department/unit:
Department of Medical Epidemiology and Biostatistics [C8]
Ethics Review:
Stockholm - 2012/2107-31/3
Ethics application approved on 9th of January 2013
Funding
Funding
Funding agency:
- Karolinska Institutet
Funding information:
Government grants
