LifeGene
LifeGene is a prospective cohort study with longitudinal follow-up, the goal of which is to collect and make available data and samples from 250,000 Swedes. The cohort is a national cohort, with the 6 Swedish universities with medical faculties involved in the governance, and Karolinska Institutet as the host organisation.
LifeGene participants respond to an extensive, web-based questionnaire covering a wide range of health and health related measures, symptoms, lifestyle and environmental exposures. At a LifeGene test center, participants perform a number of physical tests (anthropometric measures, blood pressure, spirometry, bioimpedance) and provide blood and urine samples. Recruitment is either through postal contact of adults age 18-50 in areas close to LifeGene test centers (thus far in Alingsås, Stockholm, and Umeå), by being invited to participate by a LifeGene participant, or by spontaneous self-registration. Adult participants may invite their children or other household members to participate.
Purpose:
LifeGene is a prospective cohort study with longitudinal follow-up, the goal of which is to collect and make available data and samples from 250,000 Swedes.
Go to data source
Opens in a new tabhttps://ki.se/forskning/forskningsinfrastruktur-och-miljoer/core-faciliteter-for-forskning/core-faciliteten-ki-biobank-kibb/lifegene
Citation and access
Citation and access
Data access level:
Creator/Principal investigator(s):
- Nancy Pedersen - Karolinska Institutet - Department of Medical Epidemiology and Biostatistics
Research principal:
Citation:
Method and outcome
Method and outcome
Unit of analysis:
Population:
The total population of Sweden.
Time method:
Sampling procedure:
Time period(s) investigated:
Data format/data structure:
Data collections - 4 collections
Data collections - 4 collections
Data collection - Computer-based observation
Data collection - Computer-based observation
Mode of collection:
Computer-based observation
Time period(s) for data collection:
2009 - Ongoing
Source of the data:
- Registers/Records/Accounts
- Population group
- Biological samples
Data collection - Other
Data collection - Other
Mode of collection:
Other
Time period(s) for data collection:
2009 - Ongoing
Source of the data:
- Registers/Records/Accounts
- Population group
- Biological samples
Data collection - Self-administered questionnaire
Data collection - Self-administered questionnaire
Mode of collection:
Self-administered questionnaire
Time period(s) for data collection:
2009 - Ongoing
Source of the data:
- Registers/Records/Accounts
- Population group
- Biological samples
Data collection - Measurements and tests
Data collection - Measurements and tests
Mode of collection:
Measurements and tests
Time period(s) for data collection:
2009 - Ongoing
Source of the data:
- Registers/Records/Accounts
- Population group
- Biological samples
Geographic coverage
Geographic coverage
Geographic description:
Sweden
Administrative information
Administrative information
Responsible department/unit:
Department of Medical Epidemiology and Biostatistics
Topic and keywords
Topic and keywords
CESSDA Topic Classification:
Standard för svensk indelning av forskningsämnen 2025:
Relations
Relations
Related research data:
Publications
Publications
Citation:
Almqvist C, Adami HO, Franks PW, Groop L, Ingelsson E, Kere J, Lissner L, Litton JE, Maeurer M, Michaëlsson K, Palmgren J, Pershagen G, Ploner A, Sullivan PF, Tybring G, Pedersen NL. LifeGene--a large prospective population-based study of global relevance. Eur J Epidemiol. 2011 Jan;26(1):67-77. doi: 10.1007/s10654-010-9521-x. Epub 2010 Nov 21.
