CATSS18 - The Child and Adolescent Twin Study in Sweden (18 år)
Dokumentationsfiler
Dokumentationsfiler
- SMART (2009) - Best Practices for Asking Questions about Sexual Orientation on Surveys.pdf885.51 KiB
Citering och åtkomst
Citering och åtkomst
Tillgänglighetsnivå:
Skapare/primärforskare:
Forskningshuvudman:
Data innehåller personuppgifter:
Ja
Typ av personuppgifter:
Pseudonymiserade, hälsodata, personnummer, livsstil, exponeringar, namn, adresser, enkätsvar
Kodnyckel existerar:
Ja
Data innehåller känsliga personuppgifter:
Ja
Citering:
Metod och utfall
Metod och utfall
Analysenhet:
Population:
18-åriga tvillingar födda i Sverige från och med 1992-07-01.
Tidsdimension:
Studiedesign:
- Cohort study
- Observational study
Beskrivning av studiedesign:
Insamling av data sker via webbenkät. Fram till 2020 fanns möjlighet att välja pappersenkät för de som önskade. Studien är samtyckesbaserad.
Urvalsmetod:
Beskrivning av urval:
Alla 18-åriga tvillingar i Sverige födda från och med den 1 juli 1992 enligt medicinska födelseregistret (Socialstyrelsen) och är boende i Sverige vid inbjudningstillfället inkluderas. Tvillingar som tackat nej till deltagande i Svenska Tvillingregistret, har skyddad identitet, utvandrat eller avlidit exkluderas. Endast hela tvillingpar tillfrågades, men data från både hela tvillingpar och enstaka tvillingar samlas in.
Tidsperiod(er) som undersökts:
Antal individer/objekt:
22000
Svarsfrekvens/deltagarfrekvens:
57%
Beskrivning av svarsfrekvens/deltagarfrekvens:
Det totala antalet deltagande tvillingar (genom tvilling och/eller förälders deltagande) är 22 000 av 38 400 inbjudna (December 2025), vilket ger en svarsfrekvens på 57%.
Prover/material - Nya från vetenskaplig samling/biobank
Prover/material - Nya från vetenskaplig samling/biobank
Namn:
Typ(er) av prov:
Datainsamling - Self-administered questionnaire
Datainsamling - Self-administered questionnaire
Insamlingsmetod:
Self-administered questionnaire
Beskrivning av insamlingsmetod:
Paper or web questionnaire
Tidsperiod(er) för datainsamling:
2011-01 - Ongoing
Datainsamlare:
- Karolinska Institutet
Opens a new window at ror.org.
ROR
Datakälla:
- Registers/Records/Accounts: Medical/Clinical
- Registers/Records/Accounts
Instrument
Instrument
Namn:
EDI-2
Typ:
Structured questionnaire
Beskrivning av instrument:
The Eating Disorder Inventory (EDI) is a self-report questionnaire designed to assess the presence of eating disorders. DOI: 10.1002/1098-108X(198321)2:23.0.CO;2-6 DOI: 10.1080/08039480500504537
Namn:
LSC-R
Typ:
Structured questionnaire
Beskrivning av instrument:
The Life Stressor Checklist-Revised (LSC-R) is a self-report measure used to assess traumatic or stressful life events. DOI: 10.1017/S0033291711003060
Namn:
PLE
Typ:
Structured questionnaire
Beskrivning av instrument:
Psychotic-Like Experiences (PLE) - Five items adapted from the Diagnostic Interview Schedule for Children (DIS-C) are used to screen for psychotic-like experiences in children. DOI: 10.1016/j.schres.2006.11.006
Namn:
TCI
Typ:
Structured questionnaire
Beskrivning av instrument:
The Temperament and Character Inventory (TCI) is a self-report questionnaire based on Cloninger's psychobiological model of personality. DOI: 10.1001/archpsyc.1993.01820240059008 DOI: 10.1016/0959-4388(94)90083-3 DOI: 10.1027/1015-5759.24.1.14 DOI: 10.1016/s0010-440x(98)90070-0
Namn:
HRSI
Typ:
Structured questionnaire
Beskrivning av instrument:
Hoarding Rating Scale-Interview (HRS-I) is a five-item semi-structured interview designed to assess the features of compulsive hoarding (clutter, difficulty discarding, acquisition, distress and impairment). DOI: 10.1016/j.psychres.2009.05.001
Namn:
AUDIT
Typ:
Structured questionnaire
Beskrivning av instrument:
Alcohol Use Disorders Identification Test (AUDIT) is an instrument used to identify risky and harmful alcohol consumption. The instrument was originally developed by the World Health Organisation (WHO). The questions are asked in the parent survey and addresses the parent's own drug consumption. DOI: 10.15288/jsa.1995.56.423 DOI: 10.1093/alcalc/37.3.245 DOI: 10.1111/j.1530-0277.1997.tb03811.x DOI: 10.1111/j.1360-0443.1993.tb02093.x
Namn:
DUDIT
Typ:
Structured questionnaire
Beskrivning av instrument:
Drug Use Disorders Identification Test (DUDIT) is an 11-item, self-administered screening instrument designed for drug-related issues. It provides information of the level of drug intake and selected criteria for substance abuse/harmful use and dependence, based on the ICD-10 and DSM-IV diagnostic systems. The questions are included in the parent survey and concerns the parent's drug consumption. DOI: 10.1159/000081413
Namn:
DCQ
Typ:
Structured questionnaire
Beskrivning av instrument:
DCQ is a self-report measure consisting of seven items that assess cognitive and behavioural aspects of dysmorphic concern. See document YATSS_Instrument_DCQ_svensk.pdf DOI: 10.3109/00048679809062719 DOI: 10.1046/j.1440-1614.2001.00860.x DOI: 10.3109/00048671003596055
Namn:
PCR
Typ:
Structured questionnaire
Beskrivning av instrument:
Parent Child Relationship - An instrument assessing the relationship between parents and children. DOI: 10.2307/1166050 DOI: 10.1037/0012-1649.30.1.32
Namn:
MDQ
Typ:
Structured questionnaire
Beskrivning av instrument:
MDQ is a self-report questionnaire designed to screen for the presence of bipolar disorder. DOI: 10.4088/jcp.v67n0518 (parental report) DOI: 10.1176/appi.ajp.157.11.1873 (twin report)
Namn:
LHA
Typ:
Structured questionnaire
Beskrivning av instrument:
The Life History of Aggression (LHA) scale is used for assessing trait aggression. It consists of 11 items that evaluate aggressive and antisocial behaviors that may have occurred during one's lifetime since age 13. The items are categorised into three subscales: aggression (5 items), self-directed aggression (2 items), and consequences/antisocial behavior (4 items). DOI: 10.1016/s0165-1781(97)00119-4
Namn:
SCARED
Typ:
Structured questionnaire
Beskrivning av instrument:
The SCARED (Screen for Child Anxiety Related Emotional Disorders) is a questionnaire designed to measure five dimensions of anxiety symptoms in children and adolescents. DOI: 10.1097/00004583-200503000-00013
Namn:
YPI
Typ:
Structured questionnaire
Beskrivning av instrument:
The Youth Psychopathic Traits Inventory (YPI) is a self-report measure of psychopathic personality traits in adolescents. DOI: 10.1177/1073191106298286
Namn:
TCI
Typ:
Structured questionnaire
Beskrivning av instrument:
The Temperament and Character Inventory (TCI) is a self-report questionnaire based on Cloninger's psychobiological model of personality. It is used to assess various aspects of temperament and character. The twin questionnaire includes 50 questions from this inventory. DOI: 10.1001/archpsyc.1993.01820240059008
Namn:
ASRS
Typ:
Structured questionnaire
Beskrivning av instrument:
ASRS is a self-report questionnaire consisting of 18 questions that assess symptoms of ADHD in adults according to DSM-IV criteria. DOI: 10.1017/S0033291704002892
Namn:
BOCS
Beskrivning av instrument:
The Brief Obsessive–Compulsive Scale (BOCS) is a short self-report scale used for the assessment and diagnosis of obsessive-compulsive disorder (OCD). DOI: 10.3109/08039488.2014.884631 DOI: 10.1016/0005-7967(94)00076-V DOI: 10.1001/archpsyc.1989.01810110048007
Namn:
DAWBA
Beskrivning av instrument:
DAWBA (Development and Well-Being Assessment) is a tool used to diagnose and measure mental health problems in children and adolescents. DOI: 10.1111/j.1469-7610.2000.tb02345.x
Namn:
ABCL
Typ:
Structured questionnaire
Beskrivning av instrument:
The Adult Behavior Checklist (ABCL) is designed for assessing adaptive behaviour and internalising problems and externalising problems. The eight empirically based scales are as follows: Anxiety/Depression, Withdrawal, Somatic problems, Thought Problems, Attention Problems, Aggressive Behaviour, Rule Breaking Behaviour, Obsession-Compulsion. Achenbach, T. M., & Rescorla, L. A. (2003). Manual for the ASEBA adult forms & profiles. Research Center for Children, Youth, & Families, University of Vermont, Burlington, VT, USA. ISBN: 0938565869, 9780938565864
Namn:
ATAC
Typ:
Structured questionnaire
Beskrivning av instrument:
Only the autism section of the ATAC questionnaire, used in CATSS9 (see separate data description), is used here. The questions were slightly modified to suit 18-year-olds. DOI: 10.1192/bjp.187.3.262 DOI: 10.1186/1471-244X-10-1 DOI: 10.1186/1471-244X-13-233
Namn:
DSM-IV MDE
Typ:
Structured questionnaire
Beskrivning av instrument:
Screening of depression based on the DSM-IV Criteria for Major Depressive Episode (MDE). DOI: 10.1176/appi.books.9780890420249.dsm-iv-tr
Namn:
CESD
Typ:
Structured questionnaire
Beskrivning av instrument:
The Center for Epidemiologic Studies Depression Scale Revised (CESD-R) assesses the frequency of depression-related symptoms experienced by respondents over the past week, including restless sleep, poor appetite, and feelings of loneliness. DOI: 10.1016/j.psychres.2010.08.018
Namn:
Friendship Quality
Typ:
Structured questionnaire
Beskrivning av instrument:
Questions to measure quality of friendship, adapted from the Parent-Child Relationship (PCR) scale. DOI: 10.2307/1166050
Namn:
Love Relationship
Typ:
Structured questionnaire
Beskrivning av instrument:
Love relationship questions, adapted from the Parent-Child Relationship (PCR) scale. DOI: 10.2307/1166050
Namn:
SRD
Typ:
Structured questionnaire
Beskrivning av instrument:
Self-reported Delinquency (SRD) - 25 questions to assess criminal or problematic behavior. ISBN: 91-7153-983-2 (Swedish only)
Namn:
Friends behavior
Typ:
Structured questionnaire
Beskrivning av instrument:
12 questions to assess substance use and criminal behavior among peers. ISBN: 91-7153-983-2 (Swedish only)
Namn:
CMRS
Typ:
Structured questionnaire
Beskrivning av instrument:
Child Mania Rating Scale (CMRS) - Diagnostic screening measure designed to identify symptoms of mania in children and adolescents. DOI: 10.1002/jclp.20464
Namn:
Sexuality
Typ:
Structured questionnaire
Beskrivning av instrument:
Four questions about sexual orientation. For more information on these questions, see the attached report "Best Practices for Asking Questions about Sexual Orientation on Surveys," created by the Sexual Minority Assessment Research Team (SMART).
Geografisk täckning
Geografisk täckning
Geografisk plats:
Geografisk beskrivning:
Rikstäckande
Administrativ information
Administrativ information
Ansvarig institution/enhet:
Institutionen för medicinsk epidemiologi och biostatistik / Svenska Tvillingregistret
Etikprövning:
Stockholm - Dnr: 2010/1410-31/1
The ethical application was approved on September 29, 2010.
Finansiering
Finansiering
Finansiär:
- Karolinska Institutet
Information om finansiering:
Government grants
Finansiär:
- Swedish Research Council
Opens a new window at ror.org.
ROR
Referensnummer:
2017-00641_VR, 2021-00180_VR
Information om finansiering:
Grant numbers: 2017-00641, 2021-00180
