CATSS24 - The Child and Adolescent Twin Study in Sweden (24 years)
Citation and access
Citation and access
Data access level:
Creator/Principal investigator(s):
Research principal:
Data contains personal data:
Yes
Type of personal data:
Pseudonymised, health data, social security number, lifestyle, exposures, names, addresses, survey responses
Code key exists:
Yes
Sensitive personal data:
Yes
Citation:
Method and outcome
Method and outcome
Unit of analysis:
Population:
24-year old twins born in Sweden on or after 1st July, 1992
Time method:
Study design:
- Cohort study
- Observational study
Description of study design:
Data collection is conducted through a web survey. Until the end of 2020, participants had the possibility to choose a paper survey if they wished. Participation in the study is based on informed consent.
Sampling procedure:
Description of sampling:
All 24-year-old twins born in Sweden on or after 1st July 1992, according to the Medical Birth Registry (the National Board of Health and Welfare) and living in Sweden at the time of study invitation. Twins who have declined further participation in the twin registry, have protected identity, have emigrated, or died are excluded. Only complete twin pairs are invited to participate. Data from whole twin pairs and single twins are collected.
Time period(s) investigated:
Number of individuals/objects:
11600
Response rate/participation rate:
53%
Description of the response rate/participation rate:
The total number of participating twins is 11,600 out of 21,900 invited (December 2024), resulting in a response rate of 53%.
Samples/material - Collected from scientific collection/biobank
Samples/material - Collected from scientific collection/biobank
Name:
Type(s) of sample:
Data collection - Self-administered questionnaire
Data collection - Self-administered questionnaire
Mode of collection:
Self-administered questionnaire
Description of the mode of collection:
Paper or web questionnaire
Time period(s) for data collection:
2016-11 - Ongoing
Data collector:
- Karolinska Institutet
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Source of the data:
- Registers/Records/Accounts: Medical/Clinical
- Registers/Records/Accounts
Instrument
Instrument
Name:
LHA
Type:
Structured questionnaire
Description of the instrument:
LHA (Life History of Aggression) is a widely used instrument which aims to measure trait aggression and antiscocial behavior. LHA consists of 11 items divided into three subscales: agression, self-directed aggression and consequences/antisocial behavior. DOI: 10.1016/s0165-1781(97)00119-4
Name:
Suicide
Type:
Structured questionnaire
Description of the instrument:
Six questions to assess the prevalence of sucidal thoughts and attempted suicide. DOI: 10.1176/ajp.149.1.41
Name:
CESD
Type:
Structured questionnaire
Description of the instrument:
The Center for Epidemiologic Studies Depression Scale Revised (CESD-R) is used to rate how often respondents have experienced symptoms associated with depression over the past week, such as restless sleep, poor appetite, and loneliness. DOI: 10.1016/j.psychres.2010.08.018
Name:
HADS
Type:
Structured questionnaire
Description of the instrument:
Hospital Anxiety and Depression Scale (HADS) is a self-report questionnaire designed to measure anxiety and depression in patients within somatic care. The scale is used to assess and/or detect changes in anxiety and depressive symptoms in patients outside psychiatric care. DOI: 10.1111/j.1600-0447.1983.tb09716.x
Name:
DCQ
Type:
Structured questionnaire
Description of the instrument:
Dysmorphic Concerns Questionnaire (DCQ) is a self-report questionnaire consisting of seven items designed to assess cognitive and behavioral aspects of dysmorphic disorder. It has been validated as a screening tool for body dysmorphic disorder (BDD). DOI: 10.3109/00048679809062719 DOI: 10.1046/j.1440-1614.2001.00860.x DOI: 10.3109/00048671003596055
Name:
EDI-2
Type:
Structured questionnaire
Description of the instrument:
The Eating Disorder Inventory (EDI) is a self-report questionnaire used to assess the presence of eating disorders. DOI:10.1002/1098-108X(198321)2:23.0.CO;2-6 DOI: 10.1080/08039480500504537
Name:
HRSI
Description of the instrument:
Hoarding Rating Scale-Interview (HRS-I) is a five-item semi-structured interview that assesses the features of compulsive hoarding (clutter, difficulty discarding, acquisition, distress and impairment). DOI: 10.1016/j.psychres.2009.05.001
Name:
OCI-R
Type:
Structured questionnaire
Description of the instrument:
The Obsessive–Compulsive Inventory (OCI) is a self-report measure for assessing symptoms of obsessive–compulsive disorder (OCD). In this questionnaire a shortened version is used, OCI-R. DOI.10.1037/1040-3590.14.4.485
Name:
PLE
Type:
Structured questionnaire
Description of the instrument:
Psychotic like experiences (PLE) - eight items adapted from the Diagnostic Interview Schedule for Children (DIS-C) to screen for psychotic-like experiences. DOI:10.1016/j.schres.2006.11.006
Name:
AUDIT
Type:
Structured questionnaire
Description of the instrument:
Alcohol Use Disorders Identification Test (AUDIT) is an instrument used to identify risky and harmful alcohol consumption. The instrument was originally developed by the World Health Organization (WHO). DOI: 10.15288/jsa.1995.56.423 DOI: 10.1093/alcalc/37.3.245 DOI:10.1111/j.1530-0277.1997.tb03811.x DOI: 10.1111/j.1360-0443.1993.tb02093.x
Name:
DUDIT
Type:
Structured questionnaire
Description of the instrument:
Drug Use Disorders Identification Test (DUDIT) is an 11-item self-administered screening instrument for drug-related problems, giving information on the level of drug intake and selected criteria for substance abuse/harmful use and dependence according to the ICD-10 and DSM-4 diagnostic systems. DOI: 10.1159/000081413
Name:
FFQ2020
Type:
Structured questionnaire
Description of the instrument:
An updated version of the Food Frequency Questionnaire (FFQ), used to monitor dietary habits. DOI: 10.1186/s12937-024-00984-8
Geographic coverage
Geographic coverage
Geographic location:
Geographic description:
Nationwide
Lowest geographic unit:
Parish
Highest geographic unit:
Country
Administrative information
Administrative information
Responsible department/unit:
Department of Medical Epidemiology and Biostatistics [C8]
Ethics Review:
Stockholm - 2015/1947-31/4
Ethics application approved on 21st of December 2015
Funding
Funding
Funding agency:
- Karolinska Institutet
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Funding agency:
- Swedish Research Council
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Award number:
2017-00641_VR, 2021-00180_VR
Funding information:
Grant numbers: 2017-00641, 2023-00180
