Data from a focus group study involving members of patient organizations and primary care professionals focusing on self-management interventions

Maria Larsson-Lund

doi:10.5878/9qg4-9a30

Data from a focus group study involving members of patient organizations and primary care professionals focusing on self-management interventions

https://doi.org/10.5878/9qg4-9a30

The data consists of experiences of proactive self-management efforts among individuals with chronic illnesses and healthcare professionals. Data were collected through five focus group discussions: two with members of patient associations and three with healthcare professionals working at primary care centers. The discussions were conducted in Swedish. One of the focus groups with healthcare professionals was held at their primary care unit, while the remaining sessions were conducted digitally. All sessions were audio-recorded. The recordings were transcribed verbatim using Microsoft Word. The transcribed material constitutes the dataset for analysis. A classical focus group analysis was then conducted to identify patterns and themes within the data.

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Documentation files

Citation and access

Data access level:

Access to data is restricted

Creator/Principal investigator(s):

Research principal:

Luleå University of Technology
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Principal's reference number:

633713

Data contains personal data:

Yes

Type of personal data:

The transcriptions have been pseudonymized. Personal data consists of primarily health data and personal opinions about healthcare process and organization.

Code key exists:

Yes

Sensitive personal data:

Yes

Citation:

Language:

Swedish

Method and outcome

Unit of analysis:

Population:

The individuals whose experiences form the basis of the data include members of patient organizations related to long-term pain, neurological conditions, and cardiovascular and pulmonary diseases. The study also includes healthcare professionals and their managers working in primary care settings. The participating professionals represent a range of disciplines, including occupational therapy, psychology, medicine, physiotherapy, rehabilitation coordination, and social work. In total, 23 people participated, 9 of them members of patientorganizations and 14 healthcare professionals.

Time method:

Cross-section

Study design:

Cross-sectional study
Observational study

Description of study design:

Focus group discussions

Sampling procedure:

Other

Description of sampling:

Focus group discussions were chosen as the method, as they are well-suited for gaining a deeper understanding of how individuals reason around a particular issue. This approach also supports the identification of common themes, trends, and patterns in participants’ experiences. Participants with direct experience of the topic—including both individuals living with chronic illnesses, healthcare professionals, and their managers were—were selected to contribute with valuable insights into proactive self-management efforts related to everyday activities. Their perspectives helped illuminate how working methods may need to evolve to support healthcare’s transition toward more proactive approaches. The study was conducted in northern Sweden, where patient organizations and primary care units were invited to participate through designated contact persons at the respective organizations and units. Potential participants received an information letter, and those who were interested submitted their written informed consent to the researchers.

Time period(s) investigated:

2024-03-01 - 2025-01-31

Number of individuals/objects:

23

Data format/data structure:

Text

Data collection - Focus group

Geographic coverage

Administrative information

Topic and keywords

Metadata

Version 1

Luleå University of Technology

Data from a focus group study involving members of patient organizations and primary care professionals focusing on self-management interventions

Documentation files

Citation and access

Data access level:

Creator/Principal investigator(s):

Research principal:

Principal's reference number:

Data contains personal data:

Type of personal data:

Code key exists:

Sensitive personal data:

Citation:

Language:

Method and outcome

Unit of analysis:

Population:

Time method:

Study design:

Description of study design:

Sampling procedure:

Description of sampling:

Time period(s) investigated:

Number of individuals/objects:

Data format/data structure:

Data collection - Focus group

Mode of collection:

Time period(s) for data collection:

Data collector:

Sample size:

Source of the data:

Instrument

Name:

Type:

Geographic coverage

Geographic location:

Geographic description:

Lowest geographic unit:

Highest geographic unit:

Administrative information

Responsible department/unit:

Ethics Review:

Topic and keywords

CESSDA Topic Classification:

Standard för svensk indelning av forskningsämnen 2025:

Keywords:

Metadata