Data from a focus group study involving members of patient organizations and primary care professionals focusing on self-management interventions
Citation and access
Citation and access
Data access level:
Creator/Principal investigator(s):
Research principal:
Principal's reference number:
- 633713
Data contains personal data:
Yes
Type of personal data:
The transcriptions have been pseudonymized. Personal data consists of primarily health data and personal opinions about healthcare process and organization.
Code key exists:
Yes
Sensitive personal data:
Yes
Citation:
Language:
Method and outcome
Method and outcome
Unit of analysis:
Population:
The individuals whose experiences form the basis of the data include members of patient organizations related to long-term pain, neurological conditions, and cardiovascular and pulmonary diseases. The study also includes healthcare professionals and their managers working in primary care settings. The participating professionals represent a range of disciplines, including occupational therapy, psychology, medicine, physiotherapy, rehabilitation coordination, and social work. In total, 23 people participated, 9 of them members of patientorganizations and 14 healthcare professionals.
Time method:
Study design:
- Cross-sectional study
- Observational study
Description of study design:
Focus group discussions
Sampling procedure:
Description of sampling:
Focus group discussions were chosen as the method, as they are well-suited for gaining a deeper understanding of how individuals reason around a particular issue. This approach also supports the identification of common themes, trends, and patterns in participants’ experiences. Participants with direct experience of the topic—including both individuals living with chronic illnesses, healthcare professionals, and their managers were—were selected to contribute with valuable insights into proactive self-management efforts related to everyday activities. Their perspectives helped illuminate how working methods may need to evolve to support healthcare’s transition toward more proactive approaches. The study was conducted in northern Sweden, where patient organizations and primary care units were invited to participate through designated contact persons at the respective organizations and units. Potential participants received an information letter, and those who were interested submitted their written informed consent to the researchers.
Time period(s) investigated:
Number of individuals/objects:
23
Data format/data structure:
Data collection - Focus group
Data collection - Focus group
Mode of collection:
Focus group
Time period(s) for data collection:
2024-03-01 - 2025-01-31
Data collector:
- Luleå University of Technology
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Sample size:
23
Source of the data:
- Events/Interactions
Instrument
Instrument
Name:
Semi-structured interview
Type:
Interview scheme and/or themes
Geographic coverage
Geographic coverage
Geographic location:
Geographic description:
Region Norrbotten, northern Sweden
Lowest geographic unit:
Region
Highest geographic unit:
Country
Administrative information
Administrative information
Responsible department/unit:
Department of Health, Education and Technology
Ethics Review:
Swedish Ethical Review Authority - 2023-08032-01
Ethical application approved 2024-02-14
Topic and keywords
Topic and keywords
CESSDA Topic Classification:
Standard för svensk indelning av forskningsämnen 2025:
Keywords:
Metadata
Metadata
