Data for: Family members’ evolving caregiving responsibilities after the transition from hospital to home – a qualitative longitudinal study
https://doi.org/10.5878/vwa3-3z11
The dataset consists of five semi-structured follow-up interviews with family members of people who previously experienced critical illness. The interviews were conducted in 2026 and focused on family members’ experiences of caregiving responsibilities following the transition from hospital to home, how responsibilities developed over time, and how previous experiences and the transition to home were retrospectively understood. The interviews were conducted in Swedish and transcribed verbatim.
Files with open access (2)
Files with open access (2)
Citation and access
Citation and access
Access level:
Creator/Principal investigator(s):
Research principal:
Data contains personal data:
Yes
Type of personal data:
The dataset contains pseudonymised interview data and indirectly identifying information, such as age, gender, relationship to the person who experienced critical illness, occupation and information about family and life circumstances. The interviews also contain information about participants’ experiences and circumstances related to critical illness, recovery and caregiving responsibilities.
Code key exists:
Yes
Sensitive personal data:
Yes
Citation:
Language:
Method and outcome
Method and outcome
Unit of analysis:
Population:
Five family members of people who previously experienced critical illness who participated in a qualitative follow-up interview after the transition from hospital to home.
Time method:
Study design:
- Observational study
Description of study design:
Qualitative longitudinal study based on semi-structured follow-up interviews with five family members.
Sampling procedure:
Description of sampling:
Eight people who had previously participated in qualitative studies on family members’ experiences following critical illness were invited to a follow-up interview. Five people agreed to participate and took part in the study.
Time period(s) investigated:
Number of individuals/objects:
5
Response rate/participation rate:
62.5%
Data format/data structure:
Data collection - Telephone interview
Data collection - Telephone interview
Mode of collection:
Telephone interview
Description of the mode of collection:
Data were collected through semi-structured follow-up interviews by telephone with five family members.
Time period(s) for data collection:
2026-02 - 2026-05
Data collector:
- Mid Sweden University
Sample size:
5
Number of responses:
5
Non response size:
3
Source of the data:
- Communications: Interpersonal
- Communications
Cause of non response
Cause of non response
Reason:
No contact/refusal
Size:
3
Instrument
Instrument
Name:
Interview guide
Type:
Interview scheme and/or themes
Description of the instrument:
Semi-structured interview guide for follow-up interviews with family members.
Geographic coverage
Geographic coverage
Administrative information
Administrative information
Responsible department/unit:
Department of Health Sciences
Ethical Review
Ethical Review
Reviewer:
- Swedish Ethical Review Authority
components.catalogue.resource.content.administrativeInformation.ethicalReview.rorId.srText
ROR
Registration number:
2024-02223-01
Reviewer:
- Swedish Ethical Review Authority
components.catalogue.resource.content.administrativeInformation.ethicalReview.rorId.srText
ROR
Registration number:
2026-01478-02
Topic and keywords
Topic and keywords
CESSDA topic classification:
Swedish Standard Classification of Research Subjects 2025:
Metadata
Metadata
Version 1
Mid Sweden University