The Swedish Mammography Cohort (SMC)
Documentation files
Documentation files
Citation and access
Citation and access
Data access level:
Creator/Principal investigator(s):
Research principal:
Data contains personal data:
Yes
Type of personal data:
health data
Code key exists:
Yes
Sensitive personal data:
Yes
Citation:
Method and outcome
Method and outcome
Population:
Women born 1914-1948 living in Västmanland or Uppsala County during 1987-1990.
Study design:
- Observational study
- Cohort study
Description of study design:
Longitudinal cohort study
Sampling procedure:
Description of sampling:
From 1987 to 1990, all women who lived in the Uppsala County of central Sweden and were born between 1914-1948 and all women who lived in the adjacent Västmanland County and were born between 1917-1948 received an invitation by mail to participate in a mammography screening program. Included in the mail was also an invitation to participate in this research study and a questionnaire to be answered and returned. Follow-ups have been performed approximately every tenth year starting in 1997. At next follow-up, 2008/2009, the questionnaire was extended and separated into two questionnaires. An additional follow-up was done during 2019.
Time period(s) investigated:
Description of the response rate/participation rate:
1987: 74% 1997: 70% 2008: 63% 2009: 84% 2019 health: 55% 2019 lifestyle: 83% Sub-cohort 1: 65%
Samples/material - Collected from scientific collection/biobank
Samples/material - Collected from scientific collection/biobank
Name:
Type(s) of sample:
Data collections - 9 collections
Data collections - 9 collections
Data collection - Self-administered questionnaire
Data collection - Self-administered questionnaire
Mode of collection:
Self-administered questionnaire
Time period(s) for data collection:
1987 - 1990
Sample size:
90303
Number of responses:
61433
Source of the data:
- Population group
Data collection - Self-administered questionnaire
Data collection - Self-administered questionnaire
Mode of collection:
Self-administered questionnaire
Time period(s) for data collection:
1997 - 1997-09-15
Sample size:
56030
Number of responses:
38984
Source of the data:
- Population group
Data collection
Data collection
Description of the mode of collection:
Clinical Subcohort visit 1 Uppsala
Time period(s) for data collection:
2003 - 2009
Sample size:
8311
Number of responses:
5022
Source of the data:
- Population group
Sample
Sample
Name:
Description of sample:
blood, urine, faeces, adipose, DNA
Data collection - Self-administered questionnaire
Data collection - Self-administered questionnaire
Mode of collection:
Self-administered questionnaire
Time period(s) for data collection:
2008 - 2008-12-31
Sample size:
48253
Number of responses:
30621
Source of the data:
- Population group
Data collection - Self-administered questionnaire
Data collection - Self-administered questionnaire
Mode of collection:
Self-administered questionnaire
Time period(s) for data collection:
2009 - 2009-06-30
Sample size:
30134
Number of responses:
25332
Source of the data:
- Population group
Data collection
Data collection
Description of the mode of collection:
Clinical Subcohort visit 1 – Västerås
Time period(s) for data collection:
2010 - 2019
Number of responses:
2630
Sample
Sample
Name:
Description of sample:
blood, urine, faeces, adipose, DNA
Data collection
Data collection
Description of the mode of collection:
Clinical Subcohort visit 2 – Uppsala
Time period(s) for data collection:
2015 - 2015
Number of responses:
1500
Source of the data:
- Population group
Sample
Sample
Name:
Description of sample:
blood, urine, faeces, adipose, DNA
Data collection - Self-administered questionnaire
Data collection - Self-administered questionnaire
Mode of collection:
Self-administered questionnaire
Time period(s) for data collection:
2019-01-21 - 2019-06-30
Sample size:
34473
Number of responses:
19081
Source of the data:
- Population group
Data collection - Self-administered questionnaire
Data collection - Self-administered questionnaire
Mode of collection:
Self-administered questionnaire
Time period(s) for data collection:
2019-09-16 - 2019-12-31
Sample size:
18930
Number of responses:
14922
Source of the data:
- Population group
Geographic coverage
Geographic coverage
Geographic location:
Geographic description:
Uppsala and Västmanland counties, Sweden.
Lowest geographic unit:
Municipality
Highest geographic unit:
Country
Administrative information
Administrative information
Responsible department/unit:
Department of Surgical Science
Ethics Review 1:
Uppsala - 2018/262
Ethics Review 2:
Uppsala - 2018/263
